Our Mission

To fund VHL research and education in Canada.


Our Vision

To improve the quality of life of Canadian VHL patients and families.

About Our Organization

Our History

The Canadian VHL Alliance has been active for over 20 years and has partnered with the the US VHL Alliance on key research initiatives.  Additionally our organization is affiliated with twenty-two International VHL Alliances globally.    The money that we have raised through local fundraising activities and the generousity of Canadian donors has allowed us to  support the research, education, and support of VHL patients by;

  • Providing education and support to Canadian VHL patients and their families

  • Helping to fund research that has further increased life expectancy and enhanced quality of life and life expectancy by seventeen years from just two decades ago

  • Supporting the development and awareness of the Cancer in Our Genes International Patient Databank designed to enhance our understanding of VHL in Canada, North America and globally.