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Our Mission

To fund VHL research and education in Canada.


Our Vision

To improve the quality of life of Canadian VHL patients and families.

About Our Organization

Our History

The Canadian VHL Alliance has been active for over 20 years and has partnered with the US VHL Alliance on key initiatives.  Additionally our organization is affiliated with twenty-two International VHL Alliances globally.  


The money that we have raised through local fundraising activities, like the Rick Bracey Memorial Tournament and the generosity of Canadian donors, has allowed us to support our partner, the Cancer Research Society’s (CRS) efforts. The CRS turned our $120,000 into $480,000 of research on VHL.


We also help by providing education and support to Canadian VHL patients and their families.

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