News

2022 VHLA International Medical Symposium

Toronto Ontario - Nov. 3-5, 2022

 

  • Hold the date - the 15th International Medical/Research Symposium!  We hope you will join us at the next Symposium in Toronto, Canada!  

 

If you are interested in helping our CVHLA Host Committee please let us know!

Past Annual Conferences

VHL Alliance Virtual Annual Family Weekend, October 23-25th 2020

 

Our partners in the United States, the VHL Alliance, held their Annual Family Weekend October 23 -25.

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Update and Google Poll on 

Merck's MK-6482

Treatment for Clear Cell Renal Cell Carcinoma (ccRCC)

 

Merck's MK-6482

The US based  VHL Alliance is spreading the work about the Merck MK-6482 treatment for Clear Cell Renal Cell Carcinoma (ccRCC) and other VHL related lesions.

In the link below, the conclusion stated is: "MK-6482 showed promising efficacy and tolerability in patients with VHL-associated ccRCC and responses in other VHL-related lesions. These data support further investigation of MK-6482 in VHL disease"

 

Link to the an overview of MK-6482.

Merck Press Release FDA Grants Breakthrough Therapy Designation to Merck’s Novel HIF-2α Inhibitor MK-6482 for Treatment of Certain Patients With Von Hippel-Lindau Disease- Associated Renal Cell Carcinoma

 

Click here for more information on the phase 3 trial

Google Poll

The US based VHL Alliance have developed a google poll to collect international data to provide the patients’ voice supporting MK-6482 approval by both the FDA and EMA for ALL VHL patients, and not just for the kidney.

The poll is at: https://forms.gle/ApNJF7i5e5FqFiGs5

 

We will share the results as the VHLA gives us updates. 

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VHL Alliance Annual Family Meeting Saturday, October 20th 2017

The conference was held at the Moffitt Cancer Center in Tampa Florida, here is a recap of the subjects covered and the presenters: 

       John B. Tourtelot, MD: Moffitt Cancer Center, Florida

VHL Alliance Annual Family Meeting Saturday, September 24, 2016

 

Held by US VHL Alliance in Los Angeles, California, USA

RPB Auditorium, Jules Stein Eye Institute David Geffen School of Medicine 100 Stein Plaza, Westwood, CA