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Our Board of Directors & Volunteers

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Jess Pearson

Having sought a VHL community (outside of my family) in Saskatchewan, Ontario and now Nova Scotia, I joined the Board in spring 2018 to connect with fellow warriors and their families. My family's VHL pathway seems to follow  the eyes, brain, spine and kidneys, with all of us having had brain surgery, various eye surgeries, trial drugs and years of MRIs. As a health professional I want to understand more about this disease and its processes; and as a patient I hope to create a Canadian VHL community for myself and all those who conquer this illness. I look forward to seeing what we can achieve!

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Nicky Harder
Vice Chair

My mom was a VHL warrior, I am a VHL warrior and am now raising a warrior of my own. Life with VHL is a constant battle of appointments, surgeries,  tumours and anxiety. I’ve joined the CVHLA board so I can help support research and support for Canadians living with this disease.


Patty Milburn


I have family members who are VHL Warriors and my Mom is a Cancer survivor. I look forward to helping with the leadership of the organization. 

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Susan Anson

I have a family member who is a VHL Warrior, and I have witnessed the many challenges these Warrior’s face. I have a Master’s Degree in Business Administration and successfully developed a business in Canada to support capital (infrastructure) planning.  

With experience in speaking at industry conferences across Canada as well as authoring numerous articles in industry publications, I look forward to using my business leadership skills to help support the Canadian VHL Alliance. 

Stephen Parrott
Board Member

I am honoured to be the Executive Director of this organization. Those people with VHL, must conquer the physical and emotional aspects of dealing with a disease that will never go away. I hope the work we do will make their journey a bit easier,   I have spent 30 years in the corporate world, including finance, information technology and strategic management.  I am currently a business management and strategy consultant and I bring these skills in working with this great team to make a difference in the life of VHL Warriors all over Canada. Also, I am the father of two daughters, both living with VHL.

Renee Tsang
Board Member

 I am a travel consultant and mom of two kids in Calgary, Alberta. I  come from a long line of VHL Warriors, and I have experienced firsthand the devastating effects of VHL in family members. I am committed to helping create a future for VHL Warriors to live fruitful and meaningful lives and with the advances of current technology, I hope there will be a cure for future generations, where our children and their children can be free from this disease.

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Lauren Fowler
Board Member

I am the daughter and sister of VHL Warriors. 

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Lesley Mather
Board Member

I am an innovative, strategic and accomplished creative communicator with over 20 years of experience in the public and private sectors in creative design, brand management and implementation, as well as project and resource management. Although my life hasn’t been directly impacted by VHL, it has been by other forms of cancer. I look forward to bringing my skill set to the CVHLA Board of Directors with the intention of furthering their mission and vision.

Ehvan Parrott

Communications Coordinator

 I am a VHL Warrior, both of my adrenal glands have been removed due to VHL tumors.  I am currently working full time at our local Hospital and I am looking forward to using my technical skills to help the Canadian VHL Alliance. 

Julia Parrott

Communications Coordinator

 I have had VHL my whole life with two partial and one full adrenalectomy's at the ages 8, 11 and 17. I am a Psychotherapist living in Charlottetown and I love being a part of the Canadian VHL Alliance. 

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