Cancer in Our Genes International Patient Databank
The Cancer in our Genes International Databank was developed by and is managed by the US VHL Alliance in partnership with international VHL Alliances, patients and clinical researchers. The Canadian VHL Alliance supports this initiative and encourages all Canadians with VHL to participate in this critical research initiative.
In order to preserve the functions of the affected organs, tumors are watched over time and only removed when necessary, This gives researchers a unique opportunity to understand factors affecting tumor development and growth rate.
You can provide a crucial piece of the puzzle needed to fully understand these conditions and find a cure. You and your family can make a difference. Cancer does not give up its secrets easily but your information, combined with the information from thousands of others will give researchers a chance to fight cancer on your behalf.
Don't let your information be the missing piece. Register and participate in the Databank today. All information that you share with the CGIP Databank will remain secure, confidential and for research purposes only.