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Join us for information and community 
  • Belzutifan - Latest updates
  • Endocrine tumors in VHL disease
  • Canadian VHL Clinics
  • VHL and Family planning

About the Canadian VHL Alliance. purpose and objectives

A brief summary about the disease, it's origins, diagnosis and treatment

The Canadian VHL Alliance is a team of caregivers and carriers working together. Read more to learn about the Board and the volunteers involved.

Our Vision

The Canadian VHL Alliance has been supporting VHL research for almost twenty years and is dedicated to raising funds for the research and ultimately for finding a cure for VHL while improving the quality of life for those affected by VHL.

We are pleased to share the CADTH positive recommendation for Belzutifan, next steps for in the process for the drug and other information.

Click here to open the newsletter

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